A Note on Our Recent Newsletter Pause
We recently encountered a technical issue with our blog feed, which temporarily halted the distribution of our newsletter. This interruption was unforeseen, and we sincerely apologize for any inconvenience it may have caused.
We are grateful for your understanding and patience as we worked diligently to resolve this issue. We are pleased to inform you that the problem has been fixed, and our newsletter will resume its regular schedule. Thank you for your continued support and engagement.
Catch Up on Our Latest Posts
9/17 Update on Brynn
From Tiffany Burk about Brynn: “We went to see her endocrinologist this morning to check the growth hormones. We found out that she has grown 2 inches since May. PTL!!!! (That's 1/2 an inch a month!) He's happy with her progress and frankly so are we. We will have...
6/14 Brynn Update
From Tiffany about Brynn: We are in recovery. Port is in for chemo. She's sleeping now because we are waiting on a room to be cleaned. We will have a MRI and an audiologist check her later today as a baseline before chemo. (There is a risk of hearing loss through...
6/13 Kylie Update
Update on Kylie: Kylie is 7 months old! 214 days in ICU Kylie is officially off of fentanyl and morphine for the first time in her life!!!! For the first few months of Kylie’s life she was on fentanyl and for the past five months she has been on morphine. She has...
