A Note on Our Recent Newsletter Pause

We recently encountered a technical issue with our blog feed, which temporarily halted the distribution of our newsletter. This interruption was unforeseen, and we sincerely apologize for any inconvenience it may have caused.

We are grateful for your understanding and patience as we worked diligently to resolve this issue. We are pleased to inform you that the problem has been fixed, and our newsletter will resume its regular schedule. Thank you for your continued support and engagement.

Catch Up on Our Latest Posts

7/20 Kylie Update

7/20 Kylie Update

Kylie and her dad will be flying to Houston today. Our transplant team suggested that one parent fly with Kylie, and the other parent drive (so we have a vehicle while in Houston.) They believe driving that far would be too much stress on Kylie's body, and we don't...

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5/13 Update on Kylie Brooke

Kylie is experiencing awful withdrawals. She has a fever, diarrhea, high heart rate, and increased breathing.They are doing a full work up to make sure she doesn’t have another infection but it seems to be withdrawals.She has received methadone to help with the...

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5/9 Kylie Brooke

We have the results back from the biopsy! Drum roll  NO REJECTION! God is SO GOOD! They did find a bacterial infection in the lungs but they are treating it with breathing treatments.Kylie has officially been moved to TICU!(picture below of my helper)Kylie did amazing...

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