A Note on Our Recent Newsletter Pause
We recently encountered a technical issue with our blog feed, which temporarily halted the distribution of our newsletter. This interruption was unforeseen, and we sincerely apologize for any inconvenience it may have caused.
We are grateful for your understanding and patience as we worked diligently to resolve this issue. We are pleased to inform you that the problem has been fixed, and our newsletter will resume its regular schedule. Thank you for your continued support and engagement.
Catch Up on Our Latest Posts
2/10 Kylie
Prayer Warriors, This was posted around noon today (Monday). The ups and downs are overwhelming right now! Let’s pray hard! Lonnie From Ashley: Kylie has tested postive for RSV again!! I just don’t understand… Now she needs to recieve the RSV medication for 10 days....
4/12/24 Kylie Update
Update on Kylie from her mom: Kylie Brooke turned 5 months old yesterday. She has been in the ICU for 154 days. Kylie has been showing off the past couple days. She has impressed and shocked her doctors! Her FIO2 requirements have dropped to 40-45.With her disease...
4/9/24 Kylie Update
Update on Kylie from her mom: We were told that the oldest baby that TCH has had live with this disease was 5 months old (he was transplanted at 5 months old). Kylie will be 5 months old tomorrow. She is still at the top of the transplant list and we are accepting all...
