A Note on Our Recent Newsletter Pause
We recently encountered a technical issue with our blog feed, which temporarily halted the distribution of our newsletter. This interruption was unforeseen, and we sincerely apologize for any inconvenience it may have caused.
We are grateful for your understanding and patience as we worked diligently to resolve this issue. We are pleased to inform you that the problem has been fixed, and our newsletter will resume its regular schedule. Thank you for your continued support and engagement.
Catch Up on Our Latest Posts
1/20 Update on Kylie
Update on Kylie, from Ashley: “Kylie is still requiring oxygen to keep her sats up. At one point she dropped to 69 and it was very scary. Luckily as soon as we got home our DME company set us up with oxygen equipment. The CT scan came back stable from the last scan...
12/11 Update on Ella
From Whitney, Ella’s mom: “Our brave girl heads back to clinic tomorrow. Her immune system hasn't been strong enough the last two times for her to get a new port or have chemo. AND, even though it's been a nice break, it's also pushed her timeline forward, which is...
12/11 Update on Brynn
From Tiffany Burk: “This Friday, December 13th at 11am we will be going to UMC for Brynn's MRI of the brain and spine. This will be the first (of many) since treatment. They will sedated her because it takes about 2 hours to get through it all. These last 15 months...
