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Catch Up on Our Latest Posts
2/17 Kylie
Update on Kylie: Kylie was discharged over the weekend. I do want to say that TCH (Texas Children’s) ran every test that I requested. Some people from TCH saw my previous post and they came in Kylie's room with a patient advocate and listened to all my concerns and...
4/26 Kylie Update
AND JUST LIKE THAT WE ARE OFF THE VENT!!! Kylie is officially off the ventilator! She now has a trach collar which is just a humidifier for her airways. She does not require any extra help from the ventilator! She will probably have the trach collar through the...
4/25 Update on Kylie
Kylie is offically breathing on her own! She did amazing on her first few rounds of pressure support trials yesterday! Today will be her first FULL day of BREATHING ON HER OWN! Video attached (the brown line is her breathing) sorry I couldn’t control the tears of joy....
