A Note on Our Recent Newsletter Pause

We recently encountered a technical issue with our blog feed, which temporarily halted the distribution of our newsletter. This interruption was unforeseen, and we sincerely apologize for any inconvenience it may have caused.

We are grateful for your understanding and patience as we worked diligently to resolve this issue. We are pleased to inform you that the problem has been fixed, and our newsletter will resume its regular schedule. Thank you for your continued support and engagement.

Catch Up on Our Latest Posts

5/10 AJ Update

5/10 AJ Update

From Chelsea We got his hair washed and combed all the glue out, now mommy snuggles...He's finally opening his eyes again they don't look exactly like they did before but it's progress and I'll take it... We will attempt to wein off vent today just pray he does well...

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2/18 Update on Baby Adaliyah

Update on Adilayah:February is Noonan Syndrome and Heart awareness month. This month has been so special for me and our family ever since we have seen our baby girl fight through everything she has been through so far and she is SOOOO strong ! When we found out about...

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2/18 Kaiden

Kaiden has had a pretty good day except a small moment this morning. His heart rate was all over the place suddenly. He runs around 110. But he was jumping to 150-180 then drops to the 80s. They did a neurological test and an EKG. But things looked good. They think he...

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