A Note on Our Recent Newsletter Pause
We recently encountered a technical issue with our blog feed, which temporarily halted the distribution of our newsletter. This interruption was unforeseen, and we sincerely apologize for any inconvenience it may have caused.
We are grateful for your understanding and patience as we worked diligently to resolve this issue. We are pleased to inform you that the problem has been fixed, and our newsletter will resume its regular schedule. Thank you for your continued support and engagement.
Catch Up on Our Latest Posts
10/23 Update on Kylie
Update on Kylie from Ashley: We received the results of the biopsy... Kylie's lungs have inflammation and she is at the beginning stages of chronic rejection. With Kylie having antibody rejection (AMR) and chronic rejection, she will be starting some intense treatment...
9/17 Update on Brynn
From Tiffany Burk about Brynn: “We went to see her endocrinologist this morning to check the growth hormones. We found out that she has grown 2 inches since May. PTL!!!! (That's 1/2 an inch a month!) He's happy with her progress and frankly so are we. We will have...
9/5 Update on Steve Hayes
Steve Update from Kim: “Steve is doing really well in Abilene; making lots of progress! He has been successfully off the ventilator since early last week. They have started the process of removing the trach. Today, they replaced the cannula with a smaller one. He is...
