A Note on Our Recent Newsletter Pause
We recently encountered a technical issue with our blog feed, which temporarily halted the distribution of our newsletter. This interruption was unforeseen, and we sincerely apologize for any inconvenience it may have caused.
We are grateful for your understanding and patience as we worked diligently to resolve this issue. We are pleased to inform you that the problem has been fixed, and our newsletter will resume its regular schedule. Thank you for your continued support and engagement.
Catch Up on Our Latest Posts
9/26 Update on Kylie
Update on Kylie from her momma: "We met with our new complex care team at Children’s National in DC. Our new doctor and team is absolutely amazing and very helpful and kind. I'm grateful they are now apart of Kylie's care. We have been desperately trying to get Kylie...
7/30 Steve Second Update
A text from Kim today: "The last couple of days have been crazy. Saturday, bad, bad! These last four days (including today) have been really good days, each one better than the last. He is awake and alert. Trying to communicate. His numbers are good and improving each...
7/30 Steve
Tuesday Update: Today was "Good Day #3"! Three days in a row where the numbers continue to be good and even getting better. The left chest tube was removed today, so one less tube. Yay! Steve has been awake and alert and is communicating the best he can. (I'm not a...
