by lonniehamil | Apr 30, 2026 | Uncategorized
9:26 AM Update on Kylie: It’s been a very looong morning. One of the scariest of my life. Around 4:45 am Kylie started to desat and her pulse ox woke me up. After turning her up on her oxygen multiple times she didn’t come back up. Her sats continued to...
by lonniehamil | Apr 30, 2026 | Uncategorized
6:30 AM Thursday, March 19th: PLEASE PLEASE pray for Kylie. For the first time I had to call EMS to come help me get Kylie breathing again. She passed out on me twice and it was the scariest thing I have ever been through. I’ve never seen her turn so blue. So happy we...
by lonniehamil | Apr 30, 2026 | Uncategorized
If you have seen my story then you have seen that Miss Kylie is out of the hospital! Kylie is requiring oxygen randomly throughout the day and the entire night. This unfortunately is a side effect of the rejection. The team wants us to come in on Monday to get labs...
by lonniehamil | Apr 30, 2026 | Uncategorized
Kylie had a good weekend They wanted to give a dose of IVIG before being discharged. We are working on being discharged in the next couple days and I know Kylie is so excited to finally break free of the hospital after almost 2 months inpatient. We will come back...
by lonniehamil | Apr 30, 2026 | Uncategorized
Update on Kylie: Kylie started her second treatment to slow down the rejection of her lungs early this morning. She is already throwing up and not feeling too great. I hate seeing her so sick but I know this chemotherapy drug is our last hope of slowing down the...
