5/8 Update on AJ

5/8 Update on AJ

This from Chelsea at around 2 pm: Dr came in last night and said there is clotting in the brain..they would normally give blood thinners but considering his brain is bleeding that isn’t an option at this time… a special neuro team will be in mid afternoon...
Meet, 6 Week Old, A.J.!

Meet, 6 Week Old, A.J.!

This little man was having trouble breathing last week. His parents, Chelsea and Antonio, took him to the hospital. He was initially diagnosed with COVID. He seemed to be getting some better, and then yesterday he had a stroke. The mri came back and showed bleeding on...
5/6 Update on Miss Kylie

5/6 Update on Miss Kylie

Well, Miss Kylie decided she wanted to have a sleepover in the Emergency Room last night.  While I was giving her medicine to her last night, I turned for two seconds to grab the water to flush her meds and she grabbed her extension and pulled her GJ tube right out....
4/24 Update on Daniel Gould

4/24 Update on Daniel Gould

From  Daniel’s Dad: Yesterday was a day to cherish as we celebrated our son’s seventh birthday with a full slate of activities. It was both a sweet and sobering time—a moment to reflect and give thanks. Since the biopsy, Daniel has been on a high dose of...
4/14 Meet David Ratliff!

4/14 Meet David Ratliff!

I met David’s son, Ryder, at lake Ivie earlier this week. While visiting, I found out about David’s ALS. Hopefully I’ll be heading over to meet him in person really soon! This is what Ryder shared with me: “Dad developed a weakness in his arms after a neck surgery in...