Miss Kylie had to go on higher ventilator settings.
She was having a lot of belly breathing and retractions. This is exactly the pattern I saw when we were discharged. She was doing really well then the belly breathing started then higher breathing support was needed.
So they are seeing the same thing that I saw and we are all noticing a pattern. When Kylie is on high dose steroids she is doing really well then she is weened off of them she goes backwards.
So to prevent this pattern from continuing and hopefully preventing any scary desats. We will put her daily steroids at a higher dose and start inhaled steroids.
This confirms for the team that all this if related to the rejection. We are retesting the antibodies tomorrow and will make a plan once we receive the new results.
Please pray that these daily steroids get Kylie to a stable condition and that it keeps her happy.
Tomorrow I meet with the owner of the house we plan on renting for the foreseeable future. I am so excited! God has really worked this out and I couldn’t be more grateful. This kind homeowner follows Kylie and she had a property that they asked if we were interested in. It’s perfect for our family
She even told me that she doesn’t know why they hadn’t listed it for rent for the past few months because it’s been vacant but now she realizes it wasn’t Gods time.
God has always been so good to my family and He has blessed us with each of you. I am overwhelmed with gratitude and I truly am so thankful for each of you.
As always, we love you all so much.
Please always remember God is good and He is so faithful. He doesn’t always answer the way we want (I really didn’t want to move to Texas) but He has a reason. We just have to trust Him.
Jake also has an interview with a new company here in Houston tomorrow so pray that goes well please.
