A Note on Our Recent Newsletter Pause
We recently encountered a technical issue with our blog feed, which temporarily halted the distribution of our newsletter. This interruption was unforeseen, and we sincerely apologize for any inconvenience it may have caused.
We are grateful for your understanding and patience as we worked diligently to resolve this issue. We are pleased to inform you that the problem has been fixed, and our newsletter will resume its regular schedule. Thank you for your continued support and engagement.
Catch Up on Our Latest Posts
Update on Little Miss Avery McAllister (8-19-22)
“Got the biopsy results back this afternoon. The results showed what they were expecting which is good. That means no cancer or anything crazy. So they moved her to the transplant part of the hospital to start her work up and get on the transplant list. They will be...
Savana’s Wagon Ride!
"After a few more blood transfusions since my last post things have been much better today! The blood no longer looks fresh in her diapers. We restarted her NG tube feeds and liquid diet today. She walked around in her room a tiny bit today and finally got to leave...
Little Savana is Having a Few Complications
Posted yesterday evening from Alyssa: Savana's had a bit of a rough day and a half. Last night she started having bloody diapers and her hemoglobin dropped so she had two blood transfusions last night. Her heart rate doubled over night. They stopped her NG tube feeds...


