A Note on Our Recent Newsletter Pause
We recently encountered a technical issue with our blog feed, which temporarily halted the distribution of our newsletter. This interruption was unforeseen, and we sincerely apologize for any inconvenience it may have caused.
We are grateful for your understanding and patience as we worked diligently to resolve this issue. We are pleased to inform you that the problem has been fixed, and our newsletter will resume its regular schedule. Thank you for your continued support and engagement.
Catch Up on Our Latest Posts
4/12/24 Kylie Update
Update on Kylie from her mom: Kylie Brooke turned 5 months old yesterday. She has been in the ICU for 154 days. Kylie has been showing off the past couple days. She has impressed and shocked her doctors! Her FIO2 requirements have dropped to 40-45.With her disease...
Update on Monte Holmes (9-5-19)
From Becky yesterday: “He is hiccuping much less and throwing up less too! Eating small amounts 2-3 times a day ... his energy is nonexistent ... but forcing himself to walk once a day... he sleeps most all day and night ... counts are still at 0.... getting...
Update on Kynadi Lee (8/28/19)
From Courtney Lee "Kynadi is doing well. Pain is finally manageable she is up and walking everyday. 2 1/2 more weeks of cast!!!!!! Pray boldly that she is able to walk and give her confidence to believe herself. She wants it so bad." For the rest of the story, watch...
