A Note on Our Recent Newsletter Pause

We recently encountered a technical issue with our blog feed, which temporarily halted the distribution of our newsletter. This interruption was unforeseen, and we sincerely apologize for any inconvenience it may have caused.

We are grateful for your understanding and patience as we worked diligently to resolve this issue. We are pleased to inform you that the problem has been fixed, and our newsletter will resume its regular schedule. Thank you for your continued support and engagement.

Catch Up on Our Latest Posts

5/8 Update on Kylie

5/8 Update on Kylie

We have been cleared to move forward towards decannulation! The airways look great! The next step is to do some passy muir valve trials. This will restrict airflow through her trach area and force her to breathe through her nose and mouth.If she does well with that...

read more

Update on Savana Erwin

From her mother, Alyssa: “Savana is 2 years post transplant today!!! She is doing so well! She's had a couple hospital stays recently for different viruses, but otherwise really healthy. We are so thankful! Picture from right after transplant and last month at a...

read more

Update on Danny Wren (11-22-19)

I saw Danny a bit ago. They have decided to take him back to surgery on Monday and remove more of his left foot. Hopefully this will get rid of the infection that’s causing the problems.  I cannot express how impressed I am with his, and his family’s attitude through...

read more