A Note on Our Recent Newsletter Pause
We recently encountered a technical issue with our blog feed, which temporarily halted the distribution of our newsletter. This interruption was unforeseen, and we sincerely apologize for any inconvenience it may have caused.
We are grateful for your understanding and patience as we worked diligently to resolve this issue. We are pleased to inform you that the problem has been fixed, and our newsletter will resume its regular schedule. Thank you for your continued support and engagement.
Catch Up on Our Latest Posts
5/8 Update on Kylie
We have been cleared to move forward towards decannulation! The airways look great! The next step is to do some passy muir valve trials. This will restrict airflow through her trach area and force her to breathe through her nose and mouth.If she does well with that...
Good news from Sherry Jones (7-4-20)
Text from Sherry today: “Quick update. No fever to speak of, since Sunday. Finally prescribed antibiotics & breathing treatments to ward off pneumonia, so, hopefully, on the mend! Thank y’all so much for prayers!!...
Update on Sherry Jones (6-30-20)
Sherry texted this message to me a bit ago: “Woke up with no fever, the last 3 mornings. (Yay!) The highest it got yesterday was 99.3, so that’s the good news. I’m having trouble with a cough, oxygen levels, and can’t seem to get any relief there. Really tired, but...


