A Note on Our Recent Newsletter Pause
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Catch Up on Our Latest Posts
7/24 Update on Steve Hayes
Update from Kim: "Once again we are postponed until tomorrow morning. Dr Santos has requested the OR for first thing. We've been put off today because of other more emergent cases. Steve's numbers remained good until just a bit ago and now, I believe he's just worn...
4/12/24 Kylie Update
Update on Kylie from her mom: Kylie Brooke turned 5 months old yesterday. She has been in the ICU for 154 days. Kylie has been showing off the past couple days. She has impressed and shocked her doctors! Her FIO2 requirements have dropped to 40-45.With her disease...
4/9/24 Kylie Update
Update on Kylie from her mom: We were told that the oldest baby that TCH has had live with this disease was 5 months old (he was transplanted at 5 months old). Kylie will be 5 months old tomorrow. She is still at the top of the transplant list and we are accepting all...
