A Note on Our Recent Newsletter Pause
We recently encountered a technical issue with our blog feed, which temporarily halted the distribution of our newsletter. This interruption was unforeseen, and we sincerely apologize for any inconvenience it may have caused.
We are grateful for your understanding and patience as we worked diligently to resolve this issue. We are pleased to inform you that the problem has been fixed, and our newsletter will resume its regular schedule. Thank you for your continued support and engagement.
Catch Up on Our Latest Posts
AJ Update 5/14 – from Mom
AJ is on the lowest settings possible on the vent.. He was on cpap all night long with no alarms and no apnea spells.They started him on steroids to strengthen his throat and lungs. They will stop his feeds at 4am, and 6 hours after, extubate! It's all gonna depend on...
12/9/23 Update on Henry Smith from his dad
“It seems the new bone marrow is ingrafting and his counts are beginning to come back but it’s also it’s causing quite a bit of pain. He’s on a pain pump and it helps a little. He’s still experiencing bouts of nausea and he’s very tired and weak, but he’s able to eat...
12/6 Henry Smith
Just received this message: “Transplant is underway! He’s worn out because he’s been up all night vomiting so he’s sleeping.” Let’s storm Heaven for Henry! Lonnie
