A Note on Our Recent Newsletter Pause
We recently encountered a technical issue with our blog feed, which temporarily halted the distribution of our newsletter. This interruption was unforeseen, and we sincerely apologize for any inconvenience it may have caused.
We are grateful for your understanding and patience as we worked diligently to resolve this issue. We are pleased to inform you that the problem has been fixed, and our newsletter will resume its regular schedule. Thank you for your continued support and engagement.
Catch Up on Our Latest Posts
7/31 Update on Daniel Gould
From Ashly Gould: We celebrated Daniel’s 1-year Bone Marrow Transplant Re-Birthday with a bang! Thank you to all of our friends and family who joined us yesterday, and to those who’ve stood by us throughout this past year. To say it’s been a tough 12 months doesn’t...
5/9 Kylie Brooke
We have the results back from the biopsy! Drum roll NO REJECTION! God is SO GOOD! They did find a bacterial infection in the lungs but they are treating it with breathing treatments.Kylie has officially been moved to TICU!(picture below of my helper)Kylie did amazing...
5/8 Update on Kylie
We have been cleared to move forward towards decannulation! The airways look great! The next step is to do some passy muir valve trials. This will restrict airflow through her trach area and force her to breathe through her nose and mouth.If she does well with that...
