A Note on Our Recent Newsletter Pause
We recently encountered a technical issue with our blog feed, which temporarily halted the distribution of our newsletter. This interruption was unforeseen, and we sincerely apologize for any inconvenience it may have caused.
We are grateful for your understanding and patience as we worked diligently to resolve this issue. We are pleased to inform you that the problem has been fixed, and our newsletter will resume its regular schedule. Thank you for your continued support and engagement.
Catch Up on Our Latest Posts
7/10/25 Updates on Brynn
My apologies for the delay in these posts! From Tiffany Burk (June 29th) "Brynn will be having a MRI of her brain Tuesday for her 3 month checkup. Since it is just for the brain with and without contrast we opted to not sedated her for it. This will be her first MRI...
Update on Kylie (3/25/24)
Update from Kylie's Mother "After taking the past 48 hours to cry, pray, cuddle Kylie, talk with Kylie’s doctors and cry and pray some more, her dad and I have decided to accept offers from all donors. 🫁 The scary part is they have never performed a lung...
Meet Kylie Brooke!
Note: This is the frst of several posts on Kylie. I realized that I had missed coping these over from FaceBook. My apologies! Meet Kylie Brooke! Kylie was born Nov. 10th with surfactant B deficiency. The easiest way to explain her disease is that her lungs don’t make...
