A Note on Our Recent Newsletter Pause
We recently encountered a technical issue with our blog feed, which temporarily halted the distribution of our newsletter. This interruption was unforeseen, and we sincerely apologize for any inconvenience it may have caused.
We are grateful for your understanding and patience as we worked diligently to resolve this issue. We are pleased to inform you that the problem has been fixed, and our newsletter will resume its regular schedule. Thank you for your continued support and engagement.
Catch Up on Our Latest Posts
7/11 Update on Miss Kylie
Update on Kylie:So, it looks like we will be leaving sometime next week.We still don't have an exact date yet but our transplant team is working hard to schedule the surgeon, specialists etc.Our pulmonologist said the longest he is willing to wait is the end of next...
4/16 8:30 AM Kylie Update
UPDATE on KYLIE BROOKEPrayer Warriors,Kylie has a donor!!!!!!...please pray for her and my mother as she goes thru surgery and also for the family who made the decision to help another baby as they lost their’s!Thanks so much!Lonnie
4/12/24 Kylie Update
Update on Kylie from her mom: Kylie Brooke turned 5 months old yesterday. She has been in the ICU for 154 days. Kylie has been showing off the past couple days. She has impressed and shocked her doctors! Her FIO2 requirements have dropped to 40-45.With her disease...


