4/17 7:30 AM Kylie Brooke
Kylie was just taken into the Operating Room. The donor will go into surgery around 9am. We should have visual confirmation around 10am. Once we have visual confirmation they will fly the organ to Kylie. While the organ is in transit they will time it precisely so...
4/16 7:30 PM Update on Kylie
Update on Kylie: This is now a lung transplant surgery AND a heart surgery. Unfortunately, another hole was found in Kylie’s heart. During surgery they will now need to stop her heart and repair the holes. This adds more risks to an already very risky surgery. Kylie’s...
4/16 Update on Shawna Foust
Update on Shawna Foust: From Ralph: “So a little over six months ago, Shawna was diagnosed with Glioblastoma, an ‘incurable’ form of brain cancer. We were told she only had three to six months. We’ll, it’s been seven months, and she’s still with us… But God. He...
4/16 8:30 AM Kylie Update
UPDATE on KYLIE BROOKEPrayer Warriors,Kylie has a donor!!!!!!...please pray for her and my mother as she goes thru surgery and also for the family who made the decision to help another baby as they lost their’s!Thanks so much!Lonnie
4/12/24 Kylie Update
Update on Kylie from her mom: Kylie Brooke turned 5 months old yesterday. She has been in the ICU for 154 days. Kylie has been showing off the past couple days. She has impressed and shocked her doctors! Her FIO2 requirements have dropped to 40-45.With her disease...
4/9/24 Kylie Update
Update on Kylie from her mom: We were told that the oldest baby that TCH has had live with this disease was 5 months old (he was transplanted at 5 months old). Kylie will be 5 months old tomorrow. She is still at the top of the transplant list and we are accepting all...
4/8 Update on Kylie
Update on Kylie: Kylie did have surgery still on Wednesday to place the GJ tube. She handled it very well Since Wednesday night, Kylie’s heart rate has been spiking to the 220s, which is the highest I have ever seen it. Her blood pressure is high. Also, Kylie’s...
4/1/24 Update on Kylie
Kylie’s First Easter I hope everyone had an amazing Easter I am so grateful that Jesus died on the cross for my sins This weekend was amazing for my family. My oldest daughter (McKenzie) is here with us this week (it’s her spring break) My whole family flew in to be...
3/29 Kylie Brooke Update
Update on Kylie: Kylie is not enjoying her decrease of pain medication from yesterday. She has been suffering from withdrawal today. Yesterday she was so happy, she was smiling during therapy and moving her mouth like she was trying to talk to momma. I can’t wait till...
Update on Kylie (3/25/24)
Update from Kylie's Mother "After taking the past 48 hours to cry, pray, cuddle Kylie, talk with Kylie’s doctors and cry and pray some more, her dad and I have decided to accept offers from all donors. 🫁 The scary part is they have never performed a lung...