From Julie, Kaleb’s mom:

Romans 6:7-9, 16-17
7But we have this treasure in earthen vessels, that the excellency of the power may be of God, and not of us. 8We are troubled on every side, yet not distressed; we are perplexed, but not in despair; 9Persecuted, but not forsaken; cast down, but not destroyed.
The last 5 years have filled my heart with so many emotions, and I have to be honest and say that the last 7 days have been flooded with fear, anxiousness, and sadness; however, they do not now, nor will they ever, define, govern, or guide my walk in this life. What is rooted in the deepest part of my heart are the hopes and promises made to me by the One who cannot lie. He is the Giver of great gifts, the Master of all that is good, and the Comforter who takes my hand when I am tempted to feel alone. 
He is the Good Good Father, who loves my son more than I do, and I am reminded that Kaleb is my great gift while he is this vessel that I treasure dearly.  Yet, “the excellency of the power” is of God – and not of me. How humbling that is as a mother who has prided myself in this beautiful son that I have made, when all along he was crafted from the Father who alone graciously breathed life into him.  
Although Kaleb has had one setback after another the last several days, my hope has not faded. My eyes may be turned to look upon outcomes that are not as I would have them, but even so I see God there writing the pages as we turn each one.  Tonight as I painfully watch my boy’s body endure more than it should have to, I have no idea what the outcome of all the physical battles will be. I do not know if it is God’s will for overcoming on this side or the next, but I do know that the rest of that verse assures me “16For which cause we faint not; but though our outward man perish, yet the inward man is renewed day by day. 17For our light affliction, which is but for a moment, worketh for us a far more exceeding and eternal weight of glory.” 
I am still asking God to carry Kaleb through the rough waters of all these infections. I still want healing for his broken body. I am still trusting God to protect Kaleb’s mind and shield him from pain. I am still asking for prayerful friends to lift us up to Him who knows our needs before we even know what to ask. I know that God is ever with us there in the fire, and though I may not know what the future holds, I know who holds the future, and I know who holds my hand.

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